- College urges support of sickle cell treatment bill
- College endorses national electronic infrastructure conference
The College is urging Congress to support a bill that would increase treatment options for sickle cell disease, which disproportionately affects patients in minority populations.
The Sickle Cell Treatment Act of 2003 (S. 874, H.R. 1736) would establish a research center charged with sharing information nationally about the disease and monitoring services provided to patients. The bill would provide states with federal matching funds under Medicaid for medical and nonmedical services related to sickle cell disease, including genetic counseling.
The College sent a letter endorsing the bill on April 9 to Sen. Jim Talent (R-Mo.) and Rep. Danny K. Davis (D-Ill.), the bills' sponsors in the Senate and the House. In the letter, then College President Munsey S. Wheby, MACP, pointed out that the bill supports College advocacy for flexibility and innovation in public programs, including Medicaid. (See letters online.)
ACP has given its formal endorsement to the second annual National Health Information Infrastructure (NHII) conference, which will be held in Washington July 20-23.
This year's conference, "NHII 04: Cornerstones for Electronic Healthcare," will bring together participants from all sectors interested in establishing a national health care electronic infrastructure, including physicians, payers, employers and patients. One of the goals of this year's conference is to map out an agenda for achieving a national information infrastructure within seven to 10 years.
More information on the conference is online.
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